常见问题:心脏移植

• 我如何知道我是否需要移植?
• 移植会如何改变我的生活?
• 评估很困难吗?
• 等候名单有多长?
• 当有器官的时候会发生什么?
• 手术很复杂吗?
• 移植手术后我要住院多长时间?
• 移植手术后我必须住在利来登录附近吗?
• 手术后会痛吗?
• 我的家人能和我住在一起吗?
• 我的伤疤会是什么样子?
• 移植手术后我该吃什么药呢?
• 我什么时候可以开车??
• 我什么时候可以回去工作?
• 要多久才能完全恢复?
• 我的保险会支付移植和后续护理的费用吗?
• 有没有器官移植病人的互助小组?

我如何知道我是否需要移植?

一些患有严重心脏病的病人可能受益于 移植. Your cardiologist or pulmonary medicine specialist may refer you to a transplant center for an evaluation. 评价的目的有两个方面:

• To determine the severity of your disease and whether there are any more conventional treatments
• To determine whether you would be able to survive the transplant operation and have a good long-term result afterwards

移植会如何改变我的生活?

A successful transplant will dramatically improve your symptoms of heart disease. Many transplant recipients can perform the same physical activities and enjoy the same quality of life as those without transplants. 所有移植受者, 然而, are committed to daily drug treatment and close medical supervision for the rest of their lives.

评估很困难吗?

移植评估非常全面. 除了特定的心脏评估, tests are performed to determine the function of all the major organ systems, 筛查传染病和癌症, and try and predict how well you and your family will cope with the rigors of the transplant regimen. 很多测试, 即使是复杂的, are fairly standardized and can be performed in your local community. Some tests may require you to be briefly admitted to a hospital.

Every potential candidate must make at least one outpatient visit to UCSF Medical Center to meet with the transplant doctors, 协调员和社会工作者. Typically, most of the evaluation can be completed within a week or two.

The transplant team meets weekly to discuss patient evaluations and make decisions on appropriate treatment. 病人 who are felt to be good candidates for 移植 are then put on a national waiting list.

等候名单有多长?

Unfortunately, the waiting times for heart transplants are long – often more than six months. Each patient on our waiting list returns for an outpatient visit to our transplant clinic every two to three months, 如果有必要，可以更频繁地使用.

而许多病人可以在家等待, sometimes it is necessary for patients to be admitted to the hospital in order to remain in satisfactory condition until 移植.

当有器官的时候会发生什么?

When the transplant team decides that a potential donor is suitable for one of our recipients, 我们会尽快联系病人的. Since it is not possible to predict when a suitable organ will become available and there is a limited amount of time to recover the organs successfully, it is very important that we be able to locate recipients quickly and get them into the hospital in a timely fashion.

手术很复杂吗?

这取决于每个病人的具体情况. 在评估面试中, the transplant surgeon will review the details of the surgical procedure, the risks of the procedure and the expected recovery after surgery.

移植手术后我要住院多长时间?

这取决于你的具体情况. Although patients can recover sufficiently after heart 移植 to be discharged within 10 days, it is more typical for patients to be hospitalized for two weeks or more.

移植手术后我必须住在利来登录附近吗?

We require all patients to be within 30 minutes driving distance of the transplant center for the first six weeks post discharge. The frequency of follow-up visits and lab tests during this interval can be a problem for patients who live far away. The social worker can help you locate suitable guest housing in the area.

手术后会痛吗?

Generally, most patients do not report a lot of pain after heart transplant surgery. 当你咳嗽时，这个切口确实会引起疼痛或不适. We will give you pain medication and specific instructions to lessen the pain.

我的家人能和我住在一起吗?

Your family can accompany you until you go into the transplant surgery. While you are in the intensive care unit, family members may not stay in your room. If you need assistance finding guest housing, a social worker will help you.

We have very open visiting hours and encourage family members to spend time with you. 然而, 为了保护你不受感染, 任何生病的人——感冒或流感, 例如——不应该访问.

我的伤疤会是什么样子?

伤疤在胸部正中. 它从诺赫开始, 或者胸骨的顶部, 就在你的脖子下面, 就在胸骨的末端. 最初，疤痕更加突出. 随着时间的推移，它会变成一条非常轻的细线.

移植手术后我该吃什么药呢?

你要用三种主要的免疫抑制剂, 或排斥, 心脏移植后的药物治疗. Along with the immunosuppressive medications you will need to take several medications that help protect your body from infection.

我什么时候可以开车??

After heart 移植, you can drive when your sternum, or breastbone, is fully healed. 这大约需要六个星期.

我什么时候可以回去工作?

You may return to work two to three months after the transplant surgery.

要多久才能完全恢复?

It generally takes three to six months to fully recover from heart transplant surgery. 然而, age and previous medical problems may cause a longer recovery period.

我的保险会支付移植和后续护理的费用吗?

We have a financial counselor who will verify your insurance coverage. We will obtain authorization for your transplant and follow-up care.

有没有器官移植病人的互助小组?

We have support groups for patients on the waiting list as well as for after the transplant. You will be notified of the support group meetings and the topic each month.